A week of firsts

Sorry, I couldn't post last night. Our internet was down until just a few minutes ago, so I had Jason post a quick note from St. Louis. Elise had a GREAT week last week, and like usual, kept it exciting. Monday night her broviac clotted off and she wasn't able to get her flolan. But since she was on such a low dose, I was able to just stop it, and call her doctors in the morning. We went to STL Tues afternoon and were admitted to the hospital. They observed her overnight, and took out her Broviac on Wed, sending us home soon after! So Elise is officially FREE! Now her only medicine is viagra that we have increased to 4 times a day. So last week she had a week of firsts. First time to the mall, first time to the grocery store, first shower, getting a bath 4 nights in a row, and going swimming! She is able to be a naked baby now, and it is wonderful just picking her up unattached. Jason and I are so thrilled to have her off Flolan this soon. We never thought it would happen this summer, let alone next summer. The doctors cancelled her heart cath that was scheduled for this week, and are going to reschedule for the end of July. We have a trip to Florida planned in late June that Elise will get to fly for the first time. It really has been a great week, and we just hope that she will continue to improve and not have anymore setbacks. Enjoy the pictures below. The swim ones are backwards, sorry. Love you all, Kristin

These next pitures are from the week before.

She loves her new scooter. But she only goes backwards.

This is her in her bike trailer 2 weeks ago.