Happy St. Patrick's day to everyone! We are all doing great and enjoying our spring weather. Elise continues to improve. She is still tolerating her Flolan level not being increased each week. And is still getting her oxygen at night by blow-by, with no oxygen during the day. Since we have not been increasing the Flolan, she has been able to come off the Zofran medicine for nausea. So now she is only getting Viagra three times a day. We have also been able to increase her tube feedings up to 230ml, which is almost 8 ounces three times a day. And her vomiting is at an all time low. We took her to two more restaurants and she loves it. Tonight we went out with my parents and it happened to be kids night. So we ordered Elise her first kids meal at a restaurant. We ordered her mac-n-cheese and applesauce. She played with the mac, and we tried to get her to eat some of the applesauce, but she liked our french fries better. It has been so great seeing her continue to improve. We are still cautious about keeping her well, since the cold and flu season isn't over yet. But are excited about showing her the world. I hope you all have a great week. I'll post again next Monday. Love, Kristin Oh, check out the two videos below!
